Parents Night Out!
A fundraiser for a very special cause!
Do you have kids and need some quiet time after all of the holiday craziness?
Perhaps a night out with a loved one?
Do you want to make a profound difference in a sweet little boy's life?
If you answered yes to any of these questions, this is for you!!
Perhaps a night out with a loved one?
Do you want to make a profound difference in a sweet little boy's life?
If you answered yes to any of these questions, this is for you!!
Details
Parents Night Out fundraiser to raise funds for Isaac, a young boy with SMA, and a treatment that may help extend his life.
When: Friday, January 6, 2016, 6:00pm-8:30pm
Who: For children of all ages
Hosted by: Loriann Schwartz, MA, CCC-SLP of Hope Therapies LLC
Where: Loriann's home in Tanyard Springs, Spring Hill
Suggested donation: $25 for first child for the night, $10 each additional child. Pizza will be provided!
Additional donations accepted*
*Hope Therapies LLC will match funds raised up to $200
When: Friday, January 6, 2016, 6:00pm-8:30pm
Who: For children of all ages
Hosted by: Loriann Schwartz, MA, CCC-SLP of Hope Therapies LLC
Where: Loriann's home in Tanyard Springs, Spring Hill
Suggested donation: $25 for first child for the night, $10 each additional child. Pizza will be provided!
Additional donations accepted*
*Hope Therapies LLC will match funds raised up to $200
Isaac's Story
I met Jenna in grad school and she has the sweetest family. Their second child, Isaac, appeared to be a typically developing boy early on. Just before his four month birthday though he had a scary unresponsive episode after aspirating his saliva and shortly thereafter was diagnosed with Spinal Muscular Atrophy Type 1 (SMA 1). SMA 1 is a terminal genetic disorder. Isaac was given around a year to live at that time. He has had tons of prayer and an incredible overflowing of love from his family and others around him, and I am so thankful to say he will soon have his THIRD birthday!! He is sweet, adores his sister, and enjoys playing with his switch-operated toys.
When he first received the diagnosis, there were no treatment options. Recently however Isaac was able to join a clinical trial for a new treatment that has just been given FDA approval! We do not yet know how Isaac will respond to the treatment but it has the potential to help him regain some strength and perhaps help to extend his life. While the cost of the drug is covered, the associated hospital costs currently are not and this sweet family is being faced with $90k in associated costs this year.
Any bit we can do will help!! So take a night to yourself knowing that you are truly making a difference for a young child, and let us entertain your kids for the evening with pizza and games and fun! Friday, January 6, 6:00pm-8:30pm. If you have any questions feel free to call me at 615-241-0122, or go ahead an click the button below to sign up.
When he first received the diagnosis, there were no treatment options. Recently however Isaac was able to join a clinical trial for a new treatment that has just been given FDA approval! We do not yet know how Isaac will respond to the treatment but it has the potential to help him regain some strength and perhaps help to extend his life. While the cost of the drug is covered, the associated hospital costs currently are not and this sweet family is being faced with $90k in associated costs this year.
Any bit we can do will help!! So take a night to yourself knowing that you are truly making a difference for a young child, and let us entertain your kids for the evening with pizza and games and fun! Friday, January 6, 6:00pm-8:30pm. If you have any questions feel free to call me at 615-241-0122, or go ahead an click the button below to sign up.
